Malaysian SLE Association has been in existence since 1994 but their activities are only based in KL. Recently over the last 2 years they have tried to expand their membership drive and activities to other states.
They asked for my help 2 years ago to set-up the Johor chapter. Unfortunately I was doing my training in Singapore then and was unable to help. When I came back to JB in 2008, I decided to set up the Johor chapter. I enrolled one of my patient as the coördinator for Johor chapter and together we planned for the 1st Johor SLE public forum as well as Johor Chapter AGM.
We conducted this on 30th January 2010 from 12-5pm at the Monash University (Johor Clinical School) lecture hall and we received overwhelming response with over 110 participants. I gave a talk on “What is SLE?” and Dr.Fauzi (nephrologist) on “Kidneys and SLE“.
I became the Johor rep for Malaysian SLE association about 3 weeks ago as well as the Johor chapter adviser. We manage to get about 8-9 members to become committee members for Johor Chapter and I hope we can continue from here to set up the Johor chapter.
This association is actually “by the patient, for the patient” and thus I will leave it to the patients to run this association.
Well done, everyone…………..
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